Today is my 9th week without any sort of immunosuppressant. And I feel great. Still a little unbalanced, especially when I turn my head a certain way or when I float in the pool too long…but other than that I’m doing great.
Sometimes I struggle with what I lost in those 8 years. Other times I think about how grateful I am that I have an un diagnosis. Well, I still have a diagnosis. I have UCTD. Or, they say I do. The only symptom I have is Raynauld’s.
I just got my lab back from Tuesday’s appointment and it is completely normal. Like you kind of normal. Sed rate is 2 and my CRP is .6.
I was so afraid they had made a mistake. Gosh. I tell ya, sometimes you just don’t know what or who to believe. I was thinking that after 9 weeks of no medication, I would blow the inflammation markers out of the water- especially combined with a weekend of fun at the pool minus sunscreen. But, thank God, they are normal.
I am normal.
I’m going to be okay.
Here’s to 9 weeks and counting.