That’s the way it goes. ❤️

This is not a make up related post.

It’s a celebratory post.

One I’m grateful to write.

My rheumatologist visit went well. Exceptionally well. No chemo/ no cancer medicine. In fact, no medicine at all. Not even Plaquenil. He says my labs were completely normal, like your kind of normal. Not my kind of normal. Like there is no evidence of disease at all. 

AT ALL.

DS DNA, ANA, APS, Anti Smiths, Sjorgren’s…..all negative. CRP was 1, ESR was a little high at 26…everything else, the whole damn panel was negative.

I was diagnosed with Lupus 7 years ago, and in those 7 years I have never had a negative ANA or DS DNA. Never.

There have been ups and downs and a shit ton of Prednisone. Lots of medical bills, lab bills, imaging bills. Lots of Plaquenil. Lots of tears. Burden. Fear. Ugh, I could go on and on.

The Doc changed my diagnosis to Undifferentiated Connective Tissue Disorder, and said the only reason he left it at that is because I also have Raynauld’s. So, I have to go back in 2 months, retake all of the lab and then, I might not have a diagnosis at all. Might not have to go back at all!!!!

So, what about the dizziness/ lightheadedness that I’ve been plagued with for the last 6 months??? No one knows. On thing is for sure, it’s not a Lupus issue. I’m hoping it was the Plaquenil and maybe as time goes on and it wears off, my lingering symptoms will go away.  Hopefully. Fingers crossed.

 

I went and had my hair done this morning.

Not cut, but lightened.

It’ll go nicely with the colorful feminine clothes I ordered from Forever 21.

Yes, my friends. Grateful, indeed.

xoxo,

Sunshine

2 Comments

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s